about this image

October 14, 2005

NICU Up's and Down's

[Ed. note: This was taken from my 'blog' on the March of Dimes Web site from August 2 of this year. It gives a small glimpse into the mind and heart of a parent of a baby in the NICU]

Daisy is doing very well today - I had a rough night but she did awesome. I found out about 9:30 last night that the nurse who was with her last time she bottomed out (16 spells in a day) was there overnight again. Now, logically I know it's not the nurse's fault that Daisy had more spells than usual, but somehow inside I was convinced that this woman was the cause.

Also, she had "forgotten" Daisy was off the CPAP for almost a half hour more than she was supposed to be. Daisy did great, which should make me happy, but it scared me because what if she forgot to put her back on later in the night? Or forgot something else?!?

I was very good and didn't call her during the night, but I did call about 5:30 this morning. She hadn't had one spell all night!! Not one!! Okay, so I owe this woman karmically for doubting her abilities, she had no idea I doubted her so I can't apologize to her openly. PLUS, I just called to check on her (10:00 am CST) and still, no spells!!! This means it's been over 24 hours since her last spell - yesterday she had a total of 4. Today, zero, zilch, nada - NOT ONE!!! That's the longest she's ever gone without a spell, I can't believe it.

When I found out I was in a hallway at work and I swear, I almost danced back to my seat. Her daddy is in a meeting right now so I can't give him the good news, and it's DRIVING ME CRAZY because I want him to know how good a job his daughter is doing. I am so proud of her - I hope she knows this.

We are heading to the NICU this afternoon, hopefully she can come out of her Isolette for her "elevensies" - yes, my daughter eats like a hobbit. She has already had her second breakfast for the day...

Thank God for days like this, they really balance out the harder ones. These are the days when I tell myself we are going to get through this.

Posted by sam at October 14, 2005 09:22 PM in Daisy rant

Previous Article | Next Article | Home | Contact Us